About Us and Why We Are Here

playing in the sand a few years ago

Thank you for stopping by my blog!  We have been on quite a journey and we are just enjoying the scenery as we go.

My name is “Neo” (read here for that explanation!) I am a self diagnosed Aspie although I have been living on this planet as an NT (neurotypical) Nurse/Lawyer.* I try to find ways to increase Autism Acceptance (awareness is not enough!). Don’t compare me or my son to your child and think I don’t relate.  We both have come a long way.  I always struggled with not fitting in.  Have had to learn how to work around my sensory and social issues.  (My husband still encourages me to get out more – but I don’t want to!!) I have had to work hard to control my emotions.  My parents had to deal with my meltdowns- I refused to do things, I threw things, sometimes even hit them.  Not proud of this but want people to understand what you see in me is a 40ish year old woman who has worked really hard to blend in.

My son “Sheldon” is 15 and recently diagnosed with Asperger’s, this has been “freeing” for both of us.  He was always “different” but I always related to him (I wasn’t self diagnosed until after his diagnosis).  He acted out more than I did and so I didn’t completely understand but understood what was making him act out.  I always focused on the trigger while some focused on behavior.  Behavior is communication!!  I wish the teachers would have listened.  I wish a lot of things had been different for him.  He was bullied and I wish I could have protected him.  That is why we now do Online Schooling.  My son struggles with a lot of things but most notably with social skills, social anxiety, sensory integration, behavior, and organization.

My husband, his dad probably has OCD, anxiety, and we wonder about Asperger’s. He does not always accept or understand the disabilities and challenges my son faces.  Even though they are very similar!!  He is getting better at understanding though.

Why I Blog (besides it being great therapy!)

We struggled alone for a long time and I realize now that we are not alone. I hope that I provide helpful information or a story that helps someone realize they are not alone. I have lots of stories from the past 15 years regarding getting diagnosed, supports, school issues, traveling with an aspie, and so much more.

I hope you will like my blog and leave comments! My favorite part about blogging is reading other blogs and being a part of the community of other special needs moms (and dads). We all need each other!

Samples worthy of reading 🙂

Love and Accept your Kids

Who Really Lacks Empathy

My Personal Struggle with Bullying

Acceptance means Acceptance

How to Follow us:

Facebook

Twitter

Disclaimer

*Although I happen to have medical & legal training this blog is not medical or legal advice. If I share information that has helped my son please check with your physician, psychologist, advocate, or lawyer to make sure the information is correct in your state or for your situation or child.

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Comments

  1. I enjoyed reading your introduction and thank you so much for sharing such an important part of your life with the world.

    I can relate to lots of the issues you are going through. My 9 year old nephew was diagnosed with AS few years ago , but in February he received new diagnoses which is high functioning autism with Turret’s syndrome. Since I am his full time caregiver (my sister is a single mom) I deal with his condition daily and some days are better then others, but my nephew is one of the sweetest children I ever met.

  2. Thanks for sharing your experiences with us. I’m looking forward to reading more.

  3. I stopped by from MBS and really love your blog. I think that it is imporant to share your experiences to raise awareness about what your family goes through. Will be following by twitter momentarily!

  4. What a wonderful site! It’s great that you are sharing your stories so that others who may be going through the same thing can find you and know they are not alone. One of my friends has a child with Asperger’s. I am grabbing your button and putting it on my blog, you never know who will click it, and end up being brought to this site at just the right time in their life.

  5. Thankyou for sharing your experiences.

    I can understand a lot of what you say and why you blog. I am a mum of a 13 year old son with an autistic spectrum disorder and a young daughter with aspergers. I also have an elder teenage daughter who also shows strong autistic traits so life in our house is crazy at times though I would never have it another way. For all their difficulties, my kids are fantastic and unique.

    I am the main carer in our family but do do a bit of work supporting disabled learners in adult education. Life can be hardgoing at times but I’ve learnt a lot (and am still learning) and now blog about it as well.

    I look forward to reading more of your posts.

  6. I stumbled across your blog by using the Tag Surfer on WordPress. I am glad I did. I too have a blog called Caring for Kailey. We adopted our daughter from the foster system and she too struggles with special needs. I feel the same way you do about blogging. I recently had a friend ask me if I thought it was a good idea to write about Kailey. She is 3.5 and she may be embarrassed when she gets older by what I write. Being only 3 I don’t worry about sharing her name with others only because we are small community and everyone we know already knows her story. We want her to grow up and realize that she is a miracle and a gift from God. She was brought into this world for a reason and she could help many people.

    Thank you for your honest and willingness to help other families who struggle with having a child with special needs.

    http://caringforkailey.wordpress.com

  7. Hi there, so glad to have found your blog.
    Look forward to getting to know you.
    Love and hugs.
    Lisa. xx 🙂

  8. Thanks for spreading awareness. I have aspergers as an adult and so does my 7 year old girl. She is lucky because I am pretty much in her head. Every thought she thinks I know what is wrong and what she is thinking. I didn’t have that as a child. If you as an NT need help on how to handle situations don’t hesitate.

    Also you should check out psychforums.com. They have a really helpful and active Asperger’s forum. If you read our posts you’ll understand what is going on in our minds because we are all extremely similar. Just love helping!

  9. I just found your wonderful blog via facebook/Thinking Person’s Guide to Autism. I loved your “Snowflake” post and attitude toward your son (and life!). Encouraging words from someone who has been there mean so much!

    Thank you!
    Lori

  10. I love how you refer to your Aspie son as Sheldon! Did you get that idea from watching The Big Bang Theory?

    (If you don’t know what I’m referring to, The Big Bang Theory is an awesome geeky sitcom. Dr. Sheldon Cooper is extremely brilliant, rather neurotic, and has “textbook Asperger’s”, although the writers have wisely chosen not to diagnose him within the show.)

    • Yes I am familiar with Big Bang Theory – we send scripts to them. Kidding but I swear sometimes it is exactly what happens in our house 🙂 we LOVE that show. Thanks for stopping by.

  11. Hello,
    I read one of your blogs on here for a report it was very informative and I thank you for sharing. In my short life I have dealt with two kids as far as I know who have had autism. I felt pretty bad when I could deal with one and not the other. I will definitely continue to read your stories in the hopes that I, myself will gain a better knowledge on this disorder.
    Thank you for posting these =)

  12. spectrumscribe says:

    Hello,
    I was very encouraged by this page.
    I am new to blogging and set up my blog for the same reasons that you mention.
    The ‘About’ page is usually the first post I read on a blog and I am regularly amazed and inspired by the compassion and generosity of people who walk the walk on the Autism Spectrum.

    Thanks for sharing 🙂

  13. andybfair2013 says:

    Nice intro. I’ve only been blogging for a couple of months and I’m learning so much about myself from others. I’m sure you will find a lot of support out here.
    Nice to meet you. 🙂

  14. Neo, your blog is currently included on our Actually Autistic Blogs List (anautismobserver.wordpress.com). Please click on the “How do you want your blog listed?” link at the top of that site to personalize your blog’s description.
    Thank you.
    Judy (An Autism Observer)

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